Guillermo Jofré
Guillermo Jofré, agronomist, consultant and specialist in irrigation and drainage.
Pontificia Universidad Católica de ValparaísoABOUT US
Guillermo and Mariana.
A family connected to the land, between Valle de Mirta and Lago Elizalde.
Mariana Holzapfel
Agronomist with a concentration in fruit production. Specialist in soils and crops.
Pontificia Universidad Católica de Valparaíso
Valle de Mirta
59.4 hectaresFundo El Carancho ConservationSymbolic sponsorship from US$1 per m² per month; payments are not enabled yet.Care for and document the native forest.
Explore Conservation
Lago Elizalde
50 hectaresFundo El Carancho ProductionEnergy prefeasibility · Solar and wind
View location on Google MapsWe are Mariana and Guillermo, agronomists and Julián's parents. We built a life around the land, raising animals and working as a family.
The poultry project, the garden and the daily work shaped our home. Today we are taking time to reflect, focusing on Julián, developing projects and seeking partnerships. We hope to conserve land and explore the prefeasibility of solar and wind energy.
We want this website to bring together the history of our properties, photographs of the countryside and updates on the path we are following together.
The poultry project begins
Egg production and raising pullets become a central part of the farm.
A shared story
Patagonia Datos publishes El Carancho's story in its June issue.
Julián, our priority
The family reorganises its life and reaches out to a community willing to walk alongside us.
What drives us
Caring for our family, working with respect for the land and sharing our experience honestly.
What we want to build
A living archive of El Carancho and a space where the community can learn about and support the next steps.
Our values
Care, everyday work, respect for nature and openness with those who support us.
This initial account will grow as the family adds the property's background, dates and memories.
Read the Patagonia Datos archive
ALONGSIDE JULIÁNLet's support
Let's support
his journey.
Flights are covered, and accommodation is partly covered. We are raising support for the remaining stay, local travel, therapies and operating costs.
CONFIRMED AND OUTSTANDING SUPPORTFlights and accommodation: family update · Oct 13, 2026
Support JuliánFlightsCovered through charitable flight support.
Accommodation in the United StatesPartly covered through residential support; the period and outstanding cost still need confirmation.
The steps along our journey
- APR 2025Early signs
- 12 DEC 2025Genetic confirmation
- 2026 · ONGOINGMultidisciplinary care
- 2026 · ONGOINGSearching for trials and contacting doctors in the US
- PENDINGDirect consultation with the specialist
- TO BE ASSESSEDEligibility assessments for trials aimed at slowing progression
- FUTURE GOALExplore options with curative intent
The next steps depend on medical assessment and the requirements of each trial. Seeking a cure is a future goal for the family; no curative trial is confirmed and no outcome is guaranteed.
THE JOURNEY WITH JULIÁNDuchenne trials
Duchenne trials
and resources.
We follow the research and share sources, updates and resources for families.
Explore the journey with Julián